Who we are

Cure Mucolipidosis is a charity with one focus - to cure mucolipidosis!

We are a diverse group of people who have been impacted by mucolipidosis.

Cure Mucolipidosis is a not-for-profit organization established as a 501 c3 on 18th May 2021.

The organization is located in Illinois and has a mission to work alongside the Mucolipidosis Collaborative Research Network (MCRN) that was established in 2019 to help set a pipeline for the investigation of new modes of therapies for Mucolipidosis.

Our mission & vision

Cure Mucolipidosis is a global organization that is committed to the identification and treatment of Mucolipidosis through education, advocacy and research.

We form partnerships with Science, Medicine and industry and work towards finding a cure for people affected by Mucolipidosis globally

Our vision is to serve as a resource for stakeholders in the work, identification, treatment, and continual developments towards a cure for Mucolipidosis. We will help promote and support a global multi-stakeholder collaboration for Mucolipidosis.

We will also help to identify patient numbers globally in preparation for clinical trials and drug company development for a therapy or cure.

Our partners

Coordination of Rare Diseases at Sanford (CoRDS)

CoRDS is a centralized international patient registry for all rare diseases.

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RareConnect.org

RareConnect.org aims to connect rare disease patients globally.

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